Adalia Rose Williams, who was diagnosed with progeria, dies at 15

January 14, 2022


Adalia Rose Williams, who suffered from a rare genetic disease and drew a worldwide following through social media, died on Wednesday at 15 years old.

As a baby, Williams was diagnosed with Hutchinson-Gilford progeria syndrome – a rare and fatal genetic condition that rapidly increases the appearance of aging – but that didn’t stop the teen from sharing her life on social media and YouTube. 

A post shared on both her Instagram and Facebook accounts said, “Adalia Rose Williams was set free from this world. She came into it quietly and left quietly, but her life was far from it.”

“She touched MILLIONS of people and left the biggest imprint in everyone that knew her. She is no longer in pain and is now dancing away to all the music she loves,” the post continued. 

Williams had 2.91 million subscribers on YouTube and shared videos of makeup tutorials, dancing, and a tour of her new apartment. She posted her first video 9 years ago and sang “Jesus Loves Me.”

Progeria is also referred to as the “Benjamin Button” disease from the movie “The Curious Case of Benjamin Button” where Brad Pitt’s character aged backwards. According to the Mayo Clinic, babies born with progeria appear normal at birth then start to experience slow growth and hair loss in their first year.

The average life span for someone with the disease is 13 years, although some may live up to 20 years.

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On Instagram, fellow youtubers sent their condolences and fashion designer Michael Costello posted videos of Williams in the dress he designed for her. 

“My heart is broken. I received a message at 7pm last night, Adalia Rose Williams was called home to God. I am at a loss for words and cannot stop crying,” Costello captioned the post.

“Words cannot convey how much you’ve changed my life. I will miss you dearly, friend, and I promise to cherish all the wonderful memories we’ve had together,” He concluded.

A friend of the family, Ylianna Dadashi, created a GoFundMe to go towards funeral costs and medical expenses. 

Follow reporter Asha Gilbert @Coastalasha. Email: [email protected]


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